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Support Networks

Trisomies

國家唐氏綜合症協會

 

國家唐氏綜合症協會提倡唐氏綜合症患者的價值;鼓勵全民支持、接受及包容唐氏綜合症患者。
http://www.ndss.org

國際唐氏綜合症聯盟

使命:幫助唐氏綜合症患者自立人生
http://www.theidsc.org/

Brighter Tomorrows
http://brightertomorrows.org/index.html

Down Syndrome Pregnancy, Inc.
http://downsyndromepregnancy.org/

International Mosaic Down Syndrome Association
http://www.imdsa.org/

National Association for Down Syndrome
http://www.nads.org/

National Down Syndrome Congress
http://www.ndsccenter.org/

March of Dimes

遊行示威
http://www.marchofdimes.com/baby/birthdefects_chromosomal.html

SOFT (支援13- / 18- 三體綜合症患者)

使命:支持和理解患者的家庭,及關懷18和13三體綜合症以及相關的染色體異常的患者。
http://www.trisomy.org/

18三體綜合症基金會

 

使命:鼓勵預防和治療18三體綜合症的;教育和支持的醫療專家,為全球受影響的家庭創造一個關愛的社區的。
http://www.trisomy18.org

Chromosome 18 Registry and Research Society
www.chromosome18.org

SOFT (Support for Trisomy 13/18)
www.trisomy.org

Trisomy 18 Foundation
www.trisomy18.org

瞭解更多NIPT和NHS RAPID的信息
http://www.rapid.nhs.uk

ARC (Antenatal Results and Choices)
Charity providing non-directive, individualised information and support to parents and professionals through antenatal screening, diagnosis and its consequences.
www.arc-uk.org

 

Deletion Syndromes

1p36缺失綜合症支持和關注

 

使命:通過支持,提高意識和教育去改善1p36缺失綜合症患者的個人生活。
http://www.1p36dsa.org

澳大利亞貓鳴綜合症支持團體

使命:為貓鳴綜合症患者提供資訊,幫助和支援
http://www.criduchat.asn.au/content/cri-du-chat-syndrome

ARC (Antenatal Results and Choices)
Charity providing non-directive, individualised information and support to parents and professionals through antenatal screening, diagnosis and its consequences.
www.arc-uk.org

Sex Chromosomal Aneuploidy

Klinefelter XXY綜合症的資訊和支援
資訊和建議
http://www.klinefeltersyndrome.org

透納氏綜合症支持協會
http://tss.org.uk

The Turner Syndrome Society of the United States
turnersyndrome.org

AXYS
genetic.org

The Focus Foundation
thefocusfoundation.org

ARC (Antenatal Results and Choices)
Charity providing non-directive, individualised information and support to parents and professionals through antenatal screening, diagnosis and its consequences.
www.arc-uk.org

BGI Diagnostics has provided these links solely as a resource to the reader. BGI Diagnostics is not affiliated with, nor endorses any of the listed organisations and hereby disclaims any responsibility or liability for any of the content or advice provided by any such organisations.